Two football-loving brothers born without feet have received the Christmas gift of a lifetime – their first set of prosthetic feet.
Kian and Callum Jarram, 11 and seven, from Syston, Leicestershire, both inherited Adams Oliver syndrome from their dad – a condition so rare that it only affects 125 people in the world.
The condition causes premature growth of hands and feet, leaving them without some fingers and stumps for feet.
Their small feet are covered in calluses and sores making everyday activities painful.
Kian and Callum, along with their dad Jon, 35, are the only people known to have the condition in England.
As silicone prosthetics are not covered by the NHS, Jon decided to set up a fundraising page to help his sons’ dream come true. After an outpouring of generosity from strangers, friends and family Jon managed to raise £8,000 and the boys were delighted to try their feet on for the very first time just four days before Christmas.
Dad Jon said: “This is the best Christmas present that the boys could ever get.
“All the boys dream of is being able to play their favourite sport without being in pain. Their feet just get so sore all of the time.”
“These new feet are beyond life changing for them. Kian starts secondary school next year and now they won't be any bullying about his condition.”
As well as helping the boys at school, their new feet will make such a difference when it comes to their favourite pastime.
Despite their genetic condition, both of the boys play in midfield for local teams and are big Nottingham Forrest fans.
“Running will be so much easier for them with these new feet, and they'll be able to come away from the pitch pain-free for a change,” explained their dad.
“Both the boys and myself are so grateful, it just means so much to them and it really will be life-changing.”
Jon, who also has Adams Oliver syndrome, says it has brought him and his sons closer together over the years.
He said: “I've always encouraged the boys to embrace it because it's nothing to be ashamed of. They've seen how I laugh and joke about it.
“The boys have been quizzed at school with people asking why they have such small feet, and on holiday by the pool we can hear people whispering about it.
“But it has brought the three of us closer – we're connected by this rare condition.”
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